| Rare Disease Quality Statements Survey |
Why we need your insight
We need a way to drive improvements in care for all rare diseases.
We know that quality standards improve care, because they set out what good looks like, and they can provide ways to measure how individual rare disease services are performing.
Therefore, this project has been launched, to develop a set of quality statements for what good care looks like in rare diseases.
We are asking you to complete this survey, and to tell us how important each statement is to you
You can access the survey here