DC Action signs joint letter to the government from the Together for Healthy Marrow Alliance

An open letter to the UK’s Chief Medical Officers from the Together for Healthy Marrow Alliance 12th July 2021 Professor Chris Whitty, Chief Medical Officer, England Dr Frank Atherton, Chief Medical Officer, Wales Dr Gregor Smith, Chief Medical Officer, Scotland Dr Michael McBride, Chief Medical Officer, Northern Ireland Dear Chief Medical Officers, We are an[…]

MPs debate government’s rare diseases strategy

Last week, MPs in the House of Commons debated the government’s Strategy for Rare Diseases, first published in 2013. Ben Howlett, MP for Bath and Chair of the All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions, said that this “should have heralded a new era of treatment and care for rare diseases” – but[…]