Have your say on rare disease care

Rare Barometer Voices has launched a survey on rare disease care. This is part of the Rare 2030 Foresight Study – more information on this study can be found at rare2030.eu.

Complete the survey here to ensure your voice is heard and let everyone know your hopes for the future of DC care.

It should take no more than 25 minutes to complete and closes on 17 January.

Please note:

– Your contact details will be kept in secure storage, which only the survey research team can access.

– All of the information shared is completely confidential, and complies with the General Data Protection Regulation (GDPR).

– You will be informed about the results of the survey following your participation and the results will be shared with decision-makers in order to bring about changes for the rare disease community.