DC Action is a charitable organisation focused on improving the understanding and treatment of Dyskeratosis Congenita (DC) and Telomere Biology Disorders (TBDs) in the UK.
We aim to raise awareness of the condition within the medical community, and for patients and their families.

At DC Action, we focus our efforts on three core areas

Support​

We provide support and advice for people affected by Dyskeratosis Congenita.

Education​

We aim to raise awareness of DC amongst medical professionals, patients and the public.

Advocacy

Our advocacy work focuses on research and expert care and treatments.

Clinical Trials

Information on Clinical Trials