Author:
Bringing Clinicians and Patients Together
Help us to bring clinicians and patients together to establish and develop clinical networks to improve care and management for people living with Telomere Biology Disorders. By donating to this appeal you are supporting DC Action to address these challenges and bring Clinicians and Patients Together. In November DC Action we will be holding a[…]
Raise Money for DC Action with Give as you Live
Choose DC Action as your a charity and sign up – it’s free and your charity receives 100% of the donations raised! Then you just shop as normal. They have over 6,000 stores registered like John Lewis & Partners, eBay, Currys, Expedia, Booking.com, and Marks & Spencer. If you sign up using my link, Give[…]
Join us for a Community Support Meeting
please register here: https://www.tickettailor.com/events/dcaction/1346548
Emotional Wellbeing
As part of the ‘Better Together for Healthy Bone Marrow’ collaboration between the six above charities, the Psychology Team can offer specialist emotional wellbeing support to members of the Better Together communities facing emotional challenges. Mindfulness for Stress Course with Steven Smith (Morning) 8 week course, starting 10th September Sign up here https://www.theaat.org.uk/Event/mindfulness-for-stress-course-sept-2024
Genetic Alliance CONCORD 2 study
Advisory group recruitment Are you interested in improving co-ordination of care for people living with rare conditions? Do you have a rare condition or care for someone who has? Apply to join our advisory group https://www.smartsurvey.co.uk/s/CONCORD2AdvisoryGroupRecruitLink/?utm_source=hootsuite
Time for a coffee and a chat?
Saturday 20th July More details here about get togethers around the country https://super-rare.org/rare-communities-coffee-and-chat/
Webinar – Family Life Cycles, Times of transition in the context of illness
Start: 27th June, 2024 at 12:00pm End: 27th June, 2024 at 1:00pm Sign up here https://www.theaat.org.uk/event/family-life-cycles-times-of-transition-in-the-context-of-illness-webinar
Moving Forward, Living the life that matters to you with Maria Mullan (Day time)
If you’re living with a condition and being supported by any of the charities listed below, whether you have a rare condition yourself or you’re supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is life-long. Co-created by members of the 6 charities listed[…]
DCAction and Gary Woodward dyskeratosis congenita Trust support meeting
July 3rd 7-8pm Register using this link https://www.tickettailor.com/events/dcaction/1286912