All-round superwoman Hayley Leonard is fundraising for DCAction. She's just completed a 30K practice run! (along with 2 jobs and lots of DC Action volunteer stuff) Here’s her JustGiving page, if you’d like to donate:

Emotional Wellbeing Webinars for families

This suite of webinars is designed to help parents/carers and grandparents of children diagnosed with rare conditions, including DC.
These webinars can be attended individually, but also complement each other, and they will be recorded for anyone who can’t attend the live session.