Let’s get together!
Thank you for being absolutely amazing and wanting to fundraise for your chosen charity as part of the Super Rare Campaign. Your fantastic efforts will make such a difference, we can’t wait to see what you choose to do. You can find out more about the events that are already organised here https://super-rare.org/events/ or set up one of your own.
Fundraising packs are available here https://super-rare.org/homepage/start-fundraising-now/
Whether you’re going for a walk in the woods, selling cakes in your local hall, or planning a quiz in your local pub – list your events on this page https://super-rare.org/events/ to invite other Super Rare people along. A great way to meet other people affected by Super Rare Conditions.
You can share all your fundraising stories with us here info@super-rare.org and don’t forget to tag your chosen charity in any social media posts you share as well.