Thanks to all who contributed. Our hope is that publishing papers like this will help to increase awareness of TBDs and pave the way for improved services.
You can read the paper here
http://Longhurst HJ, Paxton JK, Tummala H, Baird DM, de la Fuente J, Kulasekararaj AG, Aithal GP, Dickens JA, Rivera-Ortega P, Bowden R, Large J, Dokal I and the TeloNet Group (2026) TeloNet is born: why all specialities need to be aware of telomere biology disorders. Front. Med. 13:1780232. doi: 10.3389/fmed.2026.1780232