All-round superwoman Hayley Leonard is fundraising for DCAction. She's just completed a 30K practice run! (along with 2 jobs and lots of DC Action volunteer stuff) Here’s her JustGiving page, if you’d like to donate:

Patient Resources

Looking After Yourself – how to live your healthiest life with Dr Mohsin Badat

Fifth Rare Diseases Action Plan

NICE Rare Disease Quality Standard

DC Action Community Events

Patient Information Booklet – PDF Download

Patient Stories

Patient Stories Podcasts

Symptoms & Information for GPs

Cheat Sheets by Speciality