Through our work, we aim to support DC patients and their families. Our activities include:

  • Providing general advice, and helping to guide families through finding the right treatment, care and support through the National Health Service (NHS).
  • Providing telephone support to patients, their families, medical practitioners, and other interested parties. (Please contact us at
  • Providing medical fact sheets that patients, potential patients, and families can share with their GPs and other relevant healthcare professionals.
  • Providing lifestyle advice and support to improve overall health and wellbeing.

Please contact us at with any questions and queries.