What is it like living with a rare blood or bone marrow disorder?
Episode one of our Podcast series sets the scene with the series by discussing what it’s like to live with a rare condition day-to-day, from home life, work, going out, dealing with the healthcare system and more.
Other episodes explore how to deal with anxiety as parents of a child living with a serious rare condition, how to connect with others facing similar diagnosis, and how to navigate the healthcare system. All episodes are live now!
Listen now: https://super-rare.org/podcast
This podcast is a collaborative project between The Aplastic Anaemia Trust, DC Action, PNH Support, CAN Congenital Anaemia Network, Fanconi Hope, and SDS UK. It is funded by The National Lottery Community Fund – with thanks to players of The National Lottery.