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Emotional wellbeing support

DC Action is part of an alliance of charities called Better Together for Healthy Marrow.

Thanks to National Lottery funding, we are able to provide our community with emotional wellbeing support.  Our emotional wellbeing support includes access to webinars and several courses. These provisions are available to both DC/TBD patients (and their families/carers) and are completely free of charge. Please note, one of our partner charities (The Aplastic Anaemia Trust) kindly hosts the registration pages for these services, just to reassure you that you are in the right place when you click through to make a booking.

We offer a number of online courses throughout the year, including:

Managing Stress and Living with Uncertainty

Living with a rare bone marrow failure condition can leave you feeling overwhelmed, stressed, and unsure where to turn next.
Working with The Aplastic Anaemia Trust, we’re pleased to offer you a six-week Managing Stress and Living with Uncertainty Group will teach you the skills you need to feel more in control, sleep better, and deal with the stress and anxiety caused by a rare diagnosis.
If you are living with Dyskeratosis Congenita, or another rare bone marrow failure condition such as Aplastic Anaemia, Fanconi Anaemia or Shwachman-Diamond Syndrome, we warmly invite you to book a place at our Managing Stress and Living with Uncertainty Group, which starts on Tuesday 12th May at 9.30am.
This group is offered free of charge, thanks to funding from the National Lottery Community Fund.
To book your place, follow the link below.

Keeping Emotionally Healthy

Information Session and Q&A with Clarise Pattison

Clarise is a breathwork guide, mindfulness teacher, and coach who invites people into deeper connection with themselves through accessible practices.

This session is taking place online on Friday, 5th June between 1 and 2pm and is open It is open to all those affected by the conditions in the Better Together alliance whether it’s patients themselves or those in their circle of support. 

Sign up here

https://www.theaat.org.uk/Event/keeping-emotionally-healthy-jun26

Further Support

Should you require more immediate support, please do not hesitate to contact your GP or out of hours support if necessary. In an emergency, please call 999.

There are also a number of national services supporting people in a crisis, such as:
the Samaritans https://www.samaritans.org/ (phone 116 123)
https://www.giveusashout.org/ (text ‘SHOUT’ to 85258).

For more information, visit:
https://www.mind.org.uk/information-support/guides-to-support-and-services/crisis-services/getting-help-in-a-crisis/
or
https://www.nhs.uk/mental-health/feelings-symptoms-behaviours/behaviours/help-for-suicidal-thoughts/

For more general advice on finding the words to talk to your GP about your mental health, visit: https://www.mind.org.uk/findthewords See also: https://www.nhs.uk/mental-health/