We will be raising awareness of Telomere Biology Disorders and the other conditions represented by Better Together. If you’re in the Cambridge area come along and say hello. You can register here: https://www.eventbrite.co.uk/e/galactic-genomes-exploring-the-universe-of-rare-diseases-tickets-871804329217?utm_experiment=test_share_listing&aff=ebdsshios

Mental health is a particularly important area for the Specialised Healthcare Alliance (SHCA), a coalition of over 140 charities and corporate supporters, which advocates on behalf of people living with rare and complex conditions. In 2024, they surveyed their charity members on the importance and accessibility of mental health support, with the results set out[…]