We understand that when you or someone you love gets diagnosed with a rare disease like DC, it can be a confusing and worrying time. Or maybe you’ve known your diagnosis for a while, but want to know more. Whatever your situation, we understand and we’re here to help.
For general enquiries about DC Action and our work, please get in touch via info@dcaction.org.
If you want to find out more about dyskeratosis congenita as a condition, or talk about your own or your family’s experience, contact our Medical Advisor, Dr Hilary Longhurst, via hilary@dcaction.org.