DC Family Support Day in London – Saturday April 27th 2019

Our sister organisation, The Gary Woodward Dyskeratosis Congentia Trust, is holding a family support day on Saturday April 27th at the NCVO, Regents Wharf, 8 All Saints Street, London, N1 9RL – just a stone’s throw from Kings Cross station. Come along, bring the whole family – meet others who are affected, hear about the latest[…]


Healthy lifestyle crucial for telomere health

In an interview to promote her new book, Elizabeth Blackburn, winner of the Nobel Prize for her work on telomeres, describes the small lifestyle changes that can make long-term changes to telomere length, and to healthy lifespan.   Moderate exercise, 45 minutes of walking three times a week is as good as marathon running; stress reduction;[…]


Could Treatment for Rare Disease Reverse Aging Time Bomb?

Great excitement today at DC Action – the patient support group for dyskeratosis congenita and telomere repair defects; a study published in the New England Journal of Medicine has shown that Danazol, a cheap and widely available medication, can reverse the shortening of telomeres that leads to the premature aging responsible for their illness. Champagne[…]