The SHCA has worked with Genetic Alliance UK to publish a joint high-level ‘manifesto’ for
rare and complex diseases, setting out a consensus on steps that the next government
should take to improve the lives of those living with these conditions. The document has
been published and shared with all the major UK political parties to inform their manifesto
development. It can be accessed here.
https://shca.info/shca-partners-with-genetic-alliance-uk-to-publish-a-manifesto-for-rare-diseases/