Welcome to Super Rare!

1 Feb – 31 March 2024

Did you know that people living with Dyskeratosis congenita or related conditions, are over four times more likely to be lonely than the general population?

Super Rare is our chance to connect with people who have had similar experiences, raise money for DC Action, and spread the word about our Super Rare conditions and how they impact our lives.

So sign up for an event, organise one, or order your fundraising pack now to start planning how you can get involved during February and March and earn your t-shirt!

Order your fundraising pack: https://super-rare.org/start-fundraising-now