COVID vaccines are now available in the UK. Make sure you get yours as soon as it is offered. Most people with dyskeratosis congenita will be classified as “extremely vulnerable” and will have priority for vaccination. Not registered as extremely vulnerable? Register here: https://www.gov.uk/coronavirus-shielding-support All currently available and future COVID vaccines are suitable for those[…]
A team of clinical genetics doctors working in collaboration with the British Society for Genetic Medicine, the Clinical Genetics Society and Aimes (a healthcare IT company) have developed an interactive tool for people with rare diseases. The tool is a quick online questionnaire that allows patients to better understand their risk of Covid-19 and is based on advice[…]
Advice for patients with Dyskeratosis Congenita (DC), telomere biology disorders and their relatives Coronavirus COVID-19 is a new virus which can cause severe pneumonia and damage to other organs, although most people will have a milder illness. It is estimated that 97 to 98% of people contracting the coronavirus will recover, and the vast majority[…]