Healthy Bone Marrow Alliance bids for Lottery funding to strengthen community support

DC Action is working with six other small, rare bone marrow failure charities as part of the Together for Healthy Bone Marrow Alliance. Other members are The Aplastic Anaemia Trust, PNH Support, Congenital Anaemia Network (CAN), DBA UK, SDS UK and Fanconi Hope. Meeting regularly, we share best practice and learn from each other’s experiences. This is particularly valuable as[…]

DC Action signs joint letter to the government from the Together for Healthy Marrow Alliance

An open letter to the UK’s Chief Medical Officers from the Together for Healthy Marrow Alliance 12th July 2021 Professor Chris Whitty, Chief Medical Officer, England Dr Frank Atherton, Chief Medical Officer, Wales Dr Gregor Smith, Chief Medical Officer, Scotland Dr Michael McBride, Chief Medical Officer, Northern Ireland Dear Chief Medical Officers, We are an[…]

COVID-19: Staying safe

Advice for patients with Dyskeratosis Congenita (DC), telomere biology disorders and their relatives Coronavirus COVID-19 is a new virus which can cause severe pneumonia and damage to other organs, although most people will have a milder illness. It is estimated that 97 to 98% of people contracting the coronavirus will recover, and the vast majority[…]

Raise money for DC Action while you shop

Still have Christmas shopping to do? Planning to buy something in the sales? Raise money for your favourite charity at no cost to yourself by following these five easy steps:   Go to   Search for DC Action (two words) in the ‘find causes’ box   Click on ‘support’   Download the small app[…]