DC Action contributes to DEMISTIFI study looking into fibrosis

Did you know that scarring or fibrosis can affect different organs in the body and is a factor in many common medical conditions and rarer ones too, including Telomere Biology Disorders?   The DEMISTIFI study is an exciting new research project that aims to understand the cause of fibrosis in different organs and conditions. Information[…]

UK government announces new Rare Diseases Framework

The UK government has announced a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment. The UK Rare Diseases Framework, signed and agreed by all four nations of the UK, builds upon the successes of the previous strategy and was developed in consultation with those living with rare[…]