DC Action contributes to DEMISTIFI study looking into fibrosis

Did you know that scarring or fibrosis can affect different organs in the body and is a factor in many common medical conditions and rarer ones too, including Telomere Biology Disorders?  

The DEMISTIFI study is an exciting new research project that aims to understand the cause of fibrosis in different organs and conditions. Information on how the processes might be linked will help us understand how to prevent fibrosis in future.

Join us at the online DEMISTIFI DISCOVERY event hosted by the Research & Innovation department of Nottingham University Hospitals NHS Trust on Tuesday 20th September 6.00 pm-7.30pm to learn more about this exciting project.

You can register here https://www.eventbrite.co.uk/e/discovery-event-demystifying-multi-organ-scarring-fibrosis-tickets-403414683177

Registration is free. Everyone is welcome and we hope you will want to be involved!

Professor Gisli Jenkins from Imperial College will explain the DEMISTIFI project and Dr Hilary Longhurst from DC Action will outline opportunities for patients and advocates to be involved. We will be hearing from patients about their experience of living with fibrosis and there will be time for questions and answers and open discussion.

Multi-organ fibrosis

You may have heard about pulmonary fibrosis (lung scarring) but scarring occurs in other conditions too, including diabetes (pancreas), high blood pressure (blood vessels), chronic kidney conditions (kidney), and cirrhosis (liver). People can also be affected by fibrosis in more than one organ at the same time, known as multi-organ fibrosis.

The DEMISTIFI Study (DEfining MechanIsms Shared across mulTI-organ FIbrosis to prevent the development of long-term multi-morbidity) is led by Professor Gisli Jenkins and a team of world-leading scientists. Their research, funded by UK Research and Innovation, aims to understand the causes of fibrosis, including the genetics of disease and the how the way we live our lives might affect our risk of fibrosis. The hope is to identify possible new treatments and lifestyle changes (such weight loss and exercise) that could prevent or treat scarring and develop new technologies to monitor fibrotic diseases more effectively.

For more information see https://gtr.ukri.org/projects?ref=MR%2FW014491%2F1

This is a really exciting and innovative project because it doesn’t just focus on a single organ affected by fibrosis, but will be combining the knowledge, understanding and expertise across multiple fibrotic diseases.

We are really looking forward to hearing more about this work and as the project progresses will keep you updated with regular communications and on-line discussion events.

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The DC Action Team.